In-house activity detail
Organization
Legal organization
Crohn's and Colitis Canada
Operating organization
Crohn's and Colitis Canada
Address
2110-439 University Ave
City or town
Toronto
Territory, province or state
Ontario
Postal code
M5G 1Y9
Country
Canada
Primary contact
Name
Sylvain Chiasson
Position
Interim President and CEO
Lobbying activity
Project title
Advancing IBD Care
Year
2024
Topic
Education, Employment and training, Health, Labour, Research and development, Science and technology, Social assistance, Other: Seniors; Women's Issues
Status
Active
Details about the lobbying activity
We will be engaging with Yukon public office holders and asking the public to engage with their representatives around the key findings and recommendations in the report 2023 Impact of Inflammatory Bowel Disease in Canada. Key recommendations include the following: - models of care should evolve towards a multi-disciplinary approach that sees all members of a person's health team working together; - strategies are needed to optimize effectiveness of available therapies consistent with a "treat to target approach", including early introduction of biologic therapy, targeting normalization of objective markers of disease remission and using therapeutic drug monitoring to guide treatment decisions with biologics; - quality improvement initiatives, such as those developed under the Promoting Access to Care through Centres of Excellence (PACE) program, should be embedded in institutional policies and practices regardless of geographic locale; - access to and funding for mental health supports for children and adults living with IBD; - improved access to technologies needed to monitor bowel inflammation, including, but not limited to, endoscopy, cross-sectional imaging and fecal calprotectin; - efforts needed to reduce geographic, ethnocultural and other sociodemographic inequities in access to and utilization of health services among people living with IBD, including high-quality specialist care; - increased access to primary health care professionals, such as gastroenterologists, family physicians, IBD specialist nurses, psychotherapists, as well as allied health care professionals such as dieticians is needed to better manage long-standing disease or flares and ensure high-quality care; - policies needed to support quality of life for people living with IBD, for example, accommodations and supports in the workplace, school and public spaces (restroom access). We also continue to press for timely access to new treatment options for Ontarians with Crohn's disease and ulcerative colitis. Our initial outreach will focus on removing restrictive criteria that force people to "try and fail" on conventional therapies before being allowed to go on biologics and advanced therapies. We support physicians and specialists in being able to take a more targeted approach to drug treatment that sees the right treatment being prescribed for the right treatment at the right time.
Lobbying or plan to lobby
Premier (Ranj Pillai), Minister of Health and Social Services (Tracy-Anne McPhee), Minister of Education (Jeanie McLean), MLA - Whitehorse Centre (Emily Tredger), MLA - Whitehorse West (Richard Mostyn), MLA - Watson Lake (Patti McLeod), MLA - Vuntut Gwitchin (Annie Blake), MLA - Takhini-Kopper King (Kate White), MLA - Riverdale South (Tracy-Anne McPhee), MLA - Riverdale North (Nils Clarke), MLA - Porter Creek South (Ranj Pillai), MLA - Porter Creek North (Geraldine VanBibber), MLA - Porter Creek Centre (Yvonne Clarke), MLA - Pelly-Nitsutlin (Stacey Hassard), MLA - Mount Lorne-Southern Lakes (John Streicker), MLA - Mountainview (Jeanie McLean), MLA - Mayo-Tatchun (Jeremy Harper), MLA - Lake Laberge (Brad Cathers), MLA - Kluane (Wade Istchenko), MLA - Klondike (Sandy Silver), MLA - Copperbelt South (Scott Kent), MLA - Copperbelt North (Currie Dixon)
Type of lobbying activity
By letter and email, By phone call, By petition, Social media campaign
Has your organization received a grant from the government of Yukon within the last year?
No
Was the grant awarded related to the lobbying that has been, or will be, undertaken?
No
Registration versions
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