Salarié détail de l'activité

Organisation

Organisme juridique

Crohn's and Colitis Canada

Organisme exploitant

Crohn's and Colitis Canada

Adresse

2110-439 University Ave

Ville ou localité

Toronto

Territoire/Province/État

Ontario

Code postal

M5G 1Y8

Pays

Canada

Personne-ressource principale

Nom

Josh Berman

Poste

President and CEO

Activité de lobbyisme

Titre du projet

Advancing IBD Care

Année

2024

Sujet

Éducation, Formation et aide à l’emploi, Santé, Main-d’œuvre, Recherche et développement, Sciences et technologie, Aide sociale, Autre: Seniors; Women's Issues

État

Actif

Renseignements au sujet de l’activité de lobbyisme

We will be engaging with Yukon public office holders and asking the public to engage with their representatives around the key findings and recommendations in the report 2023 Impact of Inflammatory Bowel Disease in Canada. Key recommendations include the following: - models of care should evolve towards a multi-disciplinary approach that sees all members of a person's health team working together; - strategies are needed to optimize effectiveness of available therapies consistent with a "treat to target approach", including early introduction of biologic therapy, targeting normalization of objective markers of disease remission and using therapeutic drug monitoring to guide treatment decisions with biologics; - quality improvement initiatives, such as those developed under the Promoting Access to Care through Centres of Excellence (PACE) program, should be embedded in institutional policies and practices regardless of geographic locale; - access to and funding for mental health supports for children and adults living with IBD; - improved access to technologies needed to monitor bowel inflammation, including, but not limited to, endoscopy, cross-sectional imaging and fecal calprotectin; - efforts needed to reduce geographic, ethnocultural and other sociodemographic inequities in access to and utilization of health services among people living with IBD, including high-quality specialist care; - increased access to primary health care professionals, such as gastroenterologists, family physicians, IBD specialist nurses, psychotherapists, as well as allied health care professionals such as dieticians is needed to better manage long-standing disease or flares and ensure high-quality care; - policies needed to support quality of life for people living with IBD, for example, accommodations and supports in the workplace, school and public spaces (restroom access). We also continue to press for timely access to new treatment options for Ontarians with Crohn's disease and ulcerative colitis. Our initial outreach will focus on removing restrictive criteria that force people to "try and fail" on conventional therapies before being allowed to go on biologics and advanced therapies. We support physicians and specialists in being able to take a more targeted approach to drug treatment that sees the right treatment being prescribed for the right treatment at the right time.

Personnes ou organismes visés par l’éventuelle activité de lobbyisme

Premier (Ranj Pillai), Ministre de la Santé et des Affaires sociales (Tracy McPhee), Ministre de l’Éducation (Jeanie McLean), Député – Whitehorse Centre (Emily Tredger), Député – Whitehorse Ouest (Richard Mostyn), Député – Watson Lake (Patti McLeod), Député – Vuntut Gwitchin (Annie Blake), Député – Takhini-Kopper King (Kate White), Député – Riverdale Sud (Tracy-Anne McPhee), Député – Riverdale Nord (Nils Clarke), Député – Porter Creek Sud (Ranj Pillai), Député – Porter Creek Nord (Geraldine VanBibber), Député – Porter Creek Centre (Yvonne Clarke), Député – Pelly-Nisutlin (Stacey Hassard), Député – Mount Lorne-Lacs du Sud (John Streicker), Député – Mountainview (Jeanie McLean), Député – Mayo-Tatchun (Jeremy Harper), Député – Lac Laberge (Brad Cathers), Député – Kluane (Wade Istchenko), Député – Klondike (Sandy Silver), Député – Copperbelt Sud (Scott Kent), Député – Copperbelt Nord (Currie Dixon)

Type d’activité de lobbyisme

Lettres et courriels, Appels téléphoniques, Pétition, Campagne sur les réseaux sociaux

Votre organisme a-t-il reçu une subvention du gouvernement du Yukon au cours de la dernière année?

Non

Was the grant awarded related to the lobbying that has been, or will be, undertaken?

Non

Registration versions

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